An eight-month-old boy should not be racing a clock like this. Shawn met Baby Faziq at home — rolling in his baby walker, cheeks full, eyes alert, warm and solid in his arms.
Faziq has severe Spinal Muscular Atrophy: motor neurons destroyed, muscle unregainable. Without timely treatment — feeding tubes, breathing support. Many do not live beyond two.
His mother Norhaziqah lost son Faris to the same disease in 2022. Five months pregnant with Faziq, she saw his face on the scan and chose to continue.
